Sunday, May 9, 2010

Once Upon a Time...

there lived an amazing little girl.
 Her smile a gift to the eye.
 Her laugh a treasure to the ear.
Her JOY a blessing to the world.


Happily... we lived, together.    


Ever After...
not the ending I would have written but
Ever After she will live in my heart
Ever After I will share her story
Ever After I will thank God for allowing me to be her Mother 

Saturday, April 10, 2010

Forever the TEACHER...

I've spent many days and nights over the past few weeks at the bedside of a very special friend while he struggles with some complex medical issues. Watching this amazing soul undergo procedures and testing with such pure trust and bravery I am reminded of my sweet girl. Both of them without words but with so much to say if only people take the time to listen. My job - my duty - my passion is to ensure that they are heard!

During this recent journey people at the hospital have said things  like "oh, you know just what to do" or "wow, you've got this down". I think to myself IF ONLY THEY KNEW. So yes, I am proficient at transfering someone from bed to stretcher with multiple tubes attached - and yes, I am well versed in the lingo and inpatient ways. Sure I learned these things during the many weeks Tyra spent at AI duPont. It made me so sad to think that this 'skill set' arose from her most difficult of times.

Then I thought and took comfort in the many other lessons of Tyra. She taught me how to advocate on a whole new level. At times I called myself her agent. It was not and is not just about making sure the proper care is provided but making sure the care is provided to the unique, valued person lying in the bed. She had has a name as does my friend. She had has a story as does my friend. She had has many people who love her as does my friend. Many times both during and after Tyra's hospitalization people would say "she taught me so much".

People have gotten to know my friend. They have come to care not just for him but about him.
I believe they HEAR him!

 Thank-you Tyra for continuing to teach. I am so grateful to have been your student.      

Sunday, March 21, 2010

SPRING TRAINING...

     
On this first weekend of Spring my mind wanders to ballfields. In 1999, Tyra became one of the founding players on the Delmar Challengers Little League team - Thanks to Coach Dawn for bringing this to our area. A truly selfless undertaking given that she did not have a child playing on the team. Coach Dawn's family and friends often outnumbered the players that first season.
                                 
           How cool that Tyra's walker coordinated with the uniform.
 (No, we didn't plan it that way).  

  
 In this division each child is paired with a buddy. What great buddies Tyra had in Miss Soozie, Miss Kim, and several 'pinch hitters'. Her big sis Tisha joined us one summer as a buddy for Tyra's teammates. She was always Tyra's buddy off the fields so we agreed to share her during games.












In true Tyra form - she loved to fly around the bases the faster the better, especially if it meant rounding 3rd on 2 wheels. Also in true Tyra form emerged the DIVA. As much as she loved the DIAMOND my girl was not much for hanging in the outfield. The whole hot, dusty, sweaty thing was not very DIVA. She could often be seen in the outfield getting fanned by her buddy - yes DIVA. As the team grew so did the length of innings. It was great that so many kids were able to take part in this truly American past-time. Tyra retired her jersey after four seasons having made awesome friends and memories.
                               

Here's to Spring training, Spring cleaning and dusting off some amazing memories.

Saturday, March 6, 2010

TOUCH...

"Some people reach for your hand and touch your heart"


A year ago this morning some very kind staff at AI duPont made this casting of Tyra's hand.
Later that evening I held Tyra in my arms as she took her final breaths.
Together always...

Tyra touched many lives. Like this handprint her impression remains and
in my heart she will forever live.

Tuesday, March 2, 2010

Love alone...

"If love alone could have saved you,
 you would have lived forever."