Celebrating LIFE!!!!!

Sunday, February 26, 2012

Celebrating LIFE!!!!!

Good Morning Birthday Girl!

   Mommy is celebrating a little differently this year. I know you played a role in getting me to this place - sending signs along the way. I know you understand. I know it is what you want for me too. So Kiddo people can share in the wonderful, joyfilled images of Birthdays past http://luvinty.blogspot.com/2010/02/birthday-at-onetruemediacom_26.html
What I truly hope they see both for me and for themselves is the JOY in the present.

    It is truly in your honor that I acknowledge all the beauty of this day. The JOYS, the LOVE, the LIFE that I celebrate. Over the past 3 years Mommy has not used the camera but I have captured wonderful images with my phone. I used to think some of the 'magical' references people made about loved ones sending them messages from Heaven were ... well... a bit kooky. Sweet girl, I've gotten your messages. I've shared the beauty of a special flower - the one that hung on from Mother's Day through Thanksgiving. I've thanked you for sending rainbows and for opening my eyes to the power of the Sun and the Moon. I've witnessed the love of friendships, old & new. The people that think of us, that speak of you, that support me - I am so very blessed by it all. A bit overwhelmed at times.

   Kiddo, Mommy is doing okay. Each day is a Birthday  to be celebrated. This is how we lived together and I am so very grateful to be returning to this place of celebration.

Last night your fella and I enjoyed a wonderful performance and sent you wishes.

In his words "HAPPY BIRTHDAY BOO-DEE-FULL!"

Indeed, Happy Birthday Beautiful!

Love,

Mommy

1 comment:

Karen OwensFebruary 28, 2012 at 9:08 AM
Happy belated birthday Tyra! I'm sure you rocked it in heaven!!
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OUR STORY

During the Fall of 1992 I met & quickly fell in LOVE with the most beautiful brown eyed bundle of JOY. Tyra was just nine months old and was in respite care while her 19yo birth mother, Chelle, was undergoing chemotherapy for Osteosarcoma. Chelle carried Tyra full term but as a result of uterine rupture Tyra was deprived of oxygen which resulted in a diagnosis of Cerebral Palsy. Chelle died in August of 1993, leaving behind her two daughters Tisha (3yo) & Tyra (18mo).

The evolution of our family was complicated but a family we became and how honored I am to be Tyra's mom.

We had an amazing fun filled 15 years which you will discover as the Blog unfolds. In October of 2008, Tyra was hospitalized with GI issues. Up to this time she had only 2 very short unplanned hospitalizations. We spent 6 weeks at AI duPont that October/November with the GI team working her up from 'end to end'. She was discharged in November on TPN with a dx of Pseudo obstruction. I questioned how at 16 this now presents after she spent so many years with great health. Upon discharge we got connected with an INCREDIBLE Diagnostic Referral Physician in hopes of answering this question.

Tyra was re-admitted to the hospital in early February as she was very lethargic and still not tolerating g-tube feeds. With this admission came many new tests. Tests that were sent to outside labs. While we awaited the results Tyra's condition worsened. She had several seizures on the floor and was ultimately transferred to the PICU in a non-responsive state. An MRI showed devastating injury at the level of her brainstem. Three days after this crisis lab results came back showing Tyra to have a metabolic/mito disorder PDCD. I held my sweet girl in my arms as she took her last breaths on March 6, 2009. To say I miss her is far from adequate.