A FULL MOTHER"S DAY...

Sunday, May 8, 2011

A FULL MOTHER"S DAY...

Motherhood is FILLING. I once saw the following quote on a site related to children with extra-ordinary needs.

"If you think my hands are full, you should see my heart"

Tyra continues to FILL my heart each day. She sends daily gifts and blessings my way for which I am so grateful.

On this Mother's Day I think of my own Mom, who died when I was 12. She loved being a mother. Although our time together was short, she taught me so much about the JOY of motherhood.

FULL HANDS - FULL LAPS - FULL HEARTS

I believe my mom has enjoyed holding Tyra. Thank-you Tyra for gifting my Mom with a FULL lap.

Today, I also think of Chelle, Tyra's birth mother. I imagine Tyra is filling her heart as they are catching up on missed time. In the past 26 months I've had some troubling thoughts of jealousy over their time together. Today I am assurred that Tyra has more than enough love to go around. When we all meet again I trust we will share in our JOY and the FULLness Motherhood provides. Thank you Chelle for creating such an amazing daughter.

Happy Mother's Day, Mom - Happy Mother's Day, Chelle -

Happy Mother's Day to Mother's everywhere!

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OUR STORY

During the Fall of 1992 I met & quickly fell in LOVE with the most beautiful brown eyed bundle of JOY. Tyra was just nine months old and was in respite care while her 19yo birth mother, Chelle, was undergoing chemotherapy for Osteosarcoma. Chelle carried Tyra full term but as a result of uterine rupture Tyra was deprived of oxygen which resulted in a diagnosis of Cerebral Palsy. Chelle died in August of 1993, leaving behind her two daughters Tisha (3yo) & Tyra (18mo).

The evolution of our family was complicated but a family we became and how honored I am to be Tyra's mom.

We had an amazing fun filled 15 years which you will discover as the Blog unfolds. In October of 2008, Tyra was hospitalized with GI issues. Up to this time she had only 2 very short unplanned hospitalizations. We spent 6 weeks at AI duPont that October/November with the GI team working her up from 'end to end'. She was discharged in November on TPN with a dx of Pseudo obstruction. I questioned how at 16 this now presents after she spent so many years with great health. Upon discharge we got connected with an INCREDIBLE Diagnostic Referral Physician in hopes of answering this question.

Tyra was re-admitted to the hospital in early February as she was very lethargic and still not tolerating g-tube feeds. With this admission came many new tests. Tests that were sent to outside labs. While we awaited the results Tyra's condition worsened. She had several seizures on the floor and was ultimately transferred to the PICU in a non-responsive state. An MRI showed devastating injury at the level of her brainstem. Three days after this crisis lab results came back showing Tyra to have a metabolic/mito disorder PDCD. I held my sweet girl in my arms as she took her last breaths on March 6, 2009. To say I miss her is far from adequate.